I don’t know if you had the chance to watch Parenthood Tuesday night. If you haven’t you should search the net for the series premier.
I had tears in my eyes as the initial diagnosis of Aspergers comes out. The absolute fear of the unknown. The absolute fear and devastation of [...]
Tagged as:
Alex,
Autism,
cerebral palsy,
grief,
Landau-Kleffner Syndrome,
SPD,
Special Needs
How many times does a mother feel a failure? Am I the only one?
I think I’m a good mother, but I have more moments than I ever wish to admit where a meltdown of all that is holding me together occurs. I don’t know why. From playing a more-or-less single mom for 1 ½ months [...]
Tagged as:
grief,
life,
Motherhood,
parenting
He didn’t sleep Wednesday into Thursday. He was unfocused, obviously tired Thursday, but he slept that night. Friday his behavior plummeted, so did his language. He obviously was having seizures or persistent spike and wave discharges during his sleepless Wednesday night.
He didn’t sleep Friday into Saturday, more spike and wave discharges. Waking at 1:30 am, [...]
Tagged as:
Alex,
Autism,
grief,
Landau-Kleffner Syndrome,
Special Needs
(Photo By: horizontal.integration)
There are those moments when you feel like things couldn’t get worse; you couldn’t possibly handle any more or you might explode, break down or otherwise be sent “away” for a short break.
And in your mind, you know they could get worse. It takes the simplest thing, the one circumstance you’re [...]
Tagged as:
grief,
Recommended Reading,
Special Needs
CRAP!
I feel my heart slowly sinking again. Things like this shouldn’t be a surprise….least of all to me.
Research can do that to you. Research into prognosis’, traditional treatment options, alternative ones. Research for any obscure information, any promise, hope, belief that the length of time it’s taken for the doctors to listen to us, hear [...]
Tagged as:
Alex,
grief,
Landau-Kleffner Syndrome,
medical,
Special Needs
I Know I Have Lost. That’s how I felt for a couple days anyway. I felt as though everything I had done, learned, tried, changed was wasted. The battles I won were no longer noteworthy. The fight was futile. Any hope that lingered was foolish. I felt I was defeated. Heavy. Foggy. Suffocated. Derailed.
We had [...]
Tagged as:
Alex,
Autism,
grief,
Landau-Kleffner Syndrome,
Motherhood,
Special Needs
Derailed.
I had a plan. A plan that included tried and true as well as alternative therapies for Alex. I researched, staying up nights much later than I should; consulted medical professionals, other parents of special needs children. All writings, studies, research absorbed. The good, the bad, the ugly…I searched, read, digested, reformulated and added more [...]
Tagged as:
Alex,
Autism,
cerebral palsy,
grief,
Landau-Kleffner Syndrome,
medical,
Motherhood,
Sleep,
Special Needs,
Zach
BUT….
”So much of our lives is out of our control. We can only control our response to what happens. And who isn’t going to have complaints and concerns and questions about a life that is full of pain and struggle when that pain and struggle is beyond your control? There are some situations that are [...]
Tagged as:
Alex,
Autism,
cerebral palsy,
grief,
Motherhood,
Special Needs