A Life of Managed Chaos
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I’m at a crossroads. So many things in play.
I began General Hysteria, really, for me. I began General Hysteria for any other special needs parents that felt alone; any parent, regardless of needs, that felt isolated, unsure. In my haste to share this proud endeavor, I let a little leak to those around me. I [...]
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I don’t know if you had the chance to watch Parenthood Tuesday night. If you haven’t you should search the net for the series premier.
I had tears in my eyes as the initial diagnosis of Aspergers comes out. The absolute fear of the unknown. The absolute fear and devastation of [...]
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How many times does a mother feel a failure? Am I the only one?
I think I’m a good mother, but I have more moments than I ever wish to admit where a meltdown of all that is holding me together occurs. I don’t know why. From playing a more-or-less single mom for 1 ½ months [...]
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On this day of Remembrance, of lives lost, memories of lives celebrated, perseverance had and perseverance still progressing, I wonder what we’ve learned, how far we’ve come, do we remember all who lost their lives in such a horrific manner.
Do you remember where you were, how you were so profoundly impacted by this date’s events [...]
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He didn’t sleep Wednesday into Thursday. He was unfocused, obviously tired Thursday, but he slept that night. Friday his behavior plummeted, so did his language. He obviously was having seizures or persistent spike and wave discharges during his sleepless Wednesday night.
He didn’t sleep Friday into Saturday, more spike and wave discharges. Waking at 1:30 am, [...]
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(Photo By: horizontal.integration)
There are those moments when you feel like things couldn’t get worse; you couldn’t possibly handle any more or you might explode, break down or otherwise be sent “away” for a short break.
And in your mind, you know they could get worse. It takes the simplest thing, the one circumstance you’re [...]
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CRAP!
I feel my heart slowly sinking again. Things like this shouldn’t be a surprise….least of all to me.
Research can do that to you. Research into prognosis’, traditional treatment options, alternative ones. Research for any obscure information, any promise, hope, belief that the length of time it’s taken for the doctors to listen to us, hear [...]
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I Know I Have Lost. That’s how I felt for a couple days anyway. I felt as though everything I had done, learned, tried, changed was wasted. The battles I won were no longer noteworthy. The fight was futile. Any hope that lingered was foolish. I felt I was defeated. Heavy. Foggy. Suffocated. Derailed.
We had [...]
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Derailed.
I had a plan. A plan that included tried and true as well as alternative therapies for Alex. I researched, staying up nights much later than I should; consulted medical professionals, other parents of special needs children. All writings, studies, research absorbed. The good, the bad, the ugly…I searched, read, digested, reformulated and added more [...]
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